Description:
An unforgettable story of the debilitating progression of Huntington's Disease and the humanity that prevails.
Brief description: Lori Jones personally experienced the effects of Huntington's Disease (HD) in her family and was instrumental in starting Team Hope Fox Valley events to raise awareness and support for research and community programs through the Huntington's Disease Society of America (HDSA) - Wisconsin Chapter. A storyteller at heart, she regularly writes and speaks about her experiences with HD and many other topics to groups of all ages. Lori has three adult children and lives with her husband Chris in Wisconsin, when they aren't escaping to their cottage in Michigan's Upper Peninsula to enjoy kayaking, hiking, and campfires.This is her first book.
Review Quotes:
This was such a moving memoir. The author did an incredible job transporting the reader into her life and I often felt like I was in the room with her...listening and watching. This was a beautifully written book and it opened my eyes to the struggles individuals and their families experience as they navigate HD. - Amazon reader
What struck me most about this book is the honesty and grace that the author weaves throughout her story telling. The impact of her father's disease on her and her family as the years go on is a constant theme but not one that overpowers the book. - Goodreads reader
I loved this book! The author's story-telling is engaging and relatable, tackling some big things with honesty and vulnerability. I found myself staying up til the early morning hours more than once, telling myself "just one more chapter...!" - Goodreads reader
Memories, heart-warming, and heart-breaking. Such detail, and emotion. Sad. Poignant. Such a powerful memoir. - Goodreads reader