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Becoming an Expert Caregiver: How Structural Flaws Shape Autism Carework and Community

Contributor(s): Chiaraluce, Cara A (Author)

ISBN: 9781978831902

Publisher: Rutgers University Press

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Pub Date: December 13, 2024

Dewey: 649.1526

LCCN: 2024016313

Lexile Code: 0000

Features: Bibliography, Index

Target Age Group: NA to NA

Physical Info: 0.50" H x 8.50" L x 5.50" W ( 0.50 lbs) 176 pages

Series: Carework in a Changing World

Descriptions, Reviews, etc.

Description: This book features the voices of 50 primary caregivers of autistic and neurodivergent children who illuminate the process through which lay women become expert caregivers to provide the best care for their children. Expert caregiving captures an intensification of traditional family carework - meeting dependents' financial, emotional, and physical needs - that transcends the walls of one's private home and family and challenges the strict boundaries between many worlds: lay and professional, family and work, private and public, medical and social, and individual and society.

Review Quotes: "A rich and nuanced ethnography that charts how women challenge the hegemonic assumptions of white, middle-class narratives of motherhood, gender, and family life as caregivers of autistic children."--Jennifer Singh "author of Multiple Autisms: Spectrums of Advocacy and Genomic Science"

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