Description: Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.
Review Quotes: "This is a marvelous book for patients, families and caregivers dealing with one of the most devastating disorders that we encounter. The Brombergs have a unique perspective on the disease- Dr. Bromberg is internationally recognized expert in the clinical care of patients with ALS and his wife, Diane is a lawyer who has personally dealt with the disease in her family. The book is remarkable in its comprehensive approach. Not only dealing with the scientific, medical, emotional, functional aspects of the progressive weakness, but also about end-of-life decisions, legal concerns, spirituality, intimacy and other issues that are all part of dealing with the ever changing condition. For anyone having to deal with ALS, this book is a tremendous resource that will answer questions, relieve anxieties and give some comfort to all involved." -Richard A. Lewis, MD, Director, Electromyography Laboratory, Professor of Neurology, Cedars-Sinai, Los Angeles, CA